Wednesday, May 18, 2011

We have a winner!

So fast forward from Sunday to today.  I had the follow up with my doctor about the results of my MRI.  We now know what it is.  It is called a schwannoma.  A what?
It is a tumour of the tissue that covers nerves, called the nerve sheath. These tumours develop from a type of cell called a Schwann cell, which gives them their name. Schwannomas are often not cancerous (benign). The most common type of benign schwannoma is the acoustic neuroma. This can cause deafness because it grows on a nerve called the 8th cranial nerve, which controls hearing.  
The good news is my particular alien is not attached to my 8th cranial nerve and thus my hearing will not be affected.   Mine happens to be attached to my vagus nerve.  The what?



The vagus nerve is either one of two cranial nerves which are extremely long, extending from the brain stem all the way to the viscera. Thevagus nerves carry a wide assortment of signals to and from the brain, and they are responsible for a number of instinctive responses in the body. You may also hear the vagus nerve called Cranial Nerve X, as it is the 10th cranial nerve, or the Wandering Nerve. A great deal of research has been carried out on the vagus nerve, as it is a rather fascinating cranial nerve.
Vagus is Latin for “wandering,” and it is an accurate description of this nerve, which emerges at the back of the skull and meanders in a leisurely way through the abdomen, with a number of branching nerves coming into contact with the heart, lungs, voicebox, stomach, and ears, among other body parts. The vagus nerve carries incoming information from the nervous system to the brain, providing information about what the body is doing, and it also transmits outgoing information which governs a range of reflex responses.

This thing has attached itself to the area near my throat. The other good news is only about 1% are malignant so the odds of this thing being cancerous is very slim.  All my bloodwork and biopsies came up cancer free so the odds are in my favor.  It is a slow growing tumor so I've obviously have had it for a very long time. 

I am booked in at PLH for surgery on June 2 for removal.  The bad news is that due to where the thing is located, once the nerve is touched it becomes damaged forever.  This means there is a chance my voice will change...and not for the better.  There aren't many details yet but it is something I will have to deal with after I have healed.  I will be in the hospital for roughly 5 days and then on extended rest until I am healed.  It will be a scary process but I will get through it.
For now I am off Thursday morning on a wonderful 8 day holiday with the Guy to try and destress before the madness starts.  Keep me in your thoughts.  I am fine, my health is fine, this is just a little bump in the road of life.
Peace out.

M - R - I can't believe it took that long!

Oh my god that was the longest MRI in my life!  Then again its the only one I ever had.

So on Sunday I went in for my MRI.  We got in there at 7:30 and waited.  8 PM came and went and still I waited.  Finally the nurse showed up and took me to get me prepped.  I asked how long it would take and he said "oh about an hour" so I send the guy and kids off to be back later.   I had to strip down to my undies and put on a lovely pair of hospital pants and a really large gown. It was not a good look for me.  I got weighed and told please stand by.  At about 8:45 he finally came for me to do the scan.  He strapped me in and got me comfortable and it began.  I was given a pair of earplugs as the machine was rather loud.  To me it went really fast.

The nurse then came back in and prepped me for the second part of the scan.  They needed to inject a special dye into my vein to travel into my neck.  And thats when everything fell apart.  The nurse put the needle in but as he taped it down well didn't the damn thing pop out of the vein.  He tried again...wouldn't you know it, do you think he could find it again?  Not a chance.  For the next hour 4 different nurses tried to find a vein.  They tried on the inside of my arm and on the outside of my arm, and in my hand.  They then switched to my other arm.  They poked and poked and poked.  I felt like human pin cushion.  Finally they gave it one last kick at the can and came up a winner. All told there are 8 different spots where the needles went in.  My poor arm is a lovely shade of black and blue.  Finally they were able to finish the scan and I was on my way.  In the end I had been in the scanning room for a total of 3 hours.  The people booked after me were not thrilled.   All they knew was that there was a patient being uncooperative.  Little did they know it was my veins that didn't want to cooperate.

Pictures to come soon.

Thursday, May 5, 2011

T minus 28 days until lift off!

Time is ticking away from me at an alarming rate.  So I get a call this morning from my doctor. 

Girl:  The doc just can't get enough of you and so wants you to come in to see him on May 18.
Me:  Um...ok, my MRI is on the 15th, my vacation starts on the 19th so a quick trip in will be a piece of cake
Girl:  oh by the way, we have reserved a room for you at Hotel Peter Lougheed for June 2.
Me:  Ummmmmmmm oh.
Girl:  You know its busy season so we want you to get the best room.
Me:  Super Duper.

So suffice to say I am freaking out just a little here.  I am going to be so busy for the next month and a half that I am going to need a vacation just to recover from recovering!  Between Soccer 4 days a week, my mom visiting next week, my follow up appt., my anniversary trip, my kid's first communion,  I sure know how to make the most of my time!

I'm not so scared about whats going to happen, I always knew this thing was going to have to come out whether I liked it or not.  I am more concerned about who's going to look after the kidlets while I am out of commission.  The Guy works shift work and since he is taking time off for the vacation, he will now have to take more time off to look after the kids?  Its very delicate surgery so I have no idea how long I will be away from home.  I don't have any family close by to come and stay and my mom works so I can't really ask her to extend her visit to help out.  What to do what to do.